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Alzheimer's Disease and the long-distance caregiver
About 950 Miles Away
I created this blog so that I would have a place to write about my experiences as the long-distance caregiver for my mother who was diagnosed with Alzheimer's Disease. So that I can write freely and honestly, without bringing embarrassment on my mother or my extended family, I decided to blog anonymously.
My mom died in March 2011.
Recommended Reading
- The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in Later Life
- Learning to Speak Alzheimer's: A Groundbreaking Approach for Everyone Dealing with the Disease
- A Dignified Life: The Best Friends Approach to Alzheimer's Care, A Guide for Family Caregivers
5 comments:
You are living my life! Keep blogging--you have such a concise grasp of the changes your mom is undergoing. I wish I hadn't experienced so much self-doubt, when faced with mom's resistance.
I can truly sympathize.
Anne
Thanks, Anne. I'll try to write a new blog post soon. I don't know if it's possible not to be filled with self-doubt when helping a loved one affected by dementia. Even when others have assured me that I've done the right things, I still doubt the choices I have made. Over and over again.
I have been reading your blog and am impressed with how open you are about your feelings. I hope it is okay for me to contact you directly. I have a client who is involved in Alzheimer’s treatment research. They are looking for ways to assist those who help care for someone with Alzheimer’s. As an Alzheimer’s blogger, you cover a variety of concerns to caregivers, but I wondered if there was anything in particular you would like me to share with them.
Specifically, what challenges do you face? What things have helped you the most or what resources and information do you need more of? I would be interested in hearing your thoughts.
I will be reading your blog, and you can contact me at dave.schefcik@fleishman.com. I look forward to hearing from you.
Regards,
Dave Schefcik
Fleishman-Hillard
I spent 3.5 years working in an Alzheimer’s/Long Term Care facility in Utah and I know the difficulties and pains associated with caring for a loved one. I personally got to know some great people I helped care for and I also became close with some of their families. I’ve seen a lot of resources that help. One in particular seems to be a great benefit: http://www.thecaringspace.com
Please pass this link along to anyone you feel could benefit from it.
I also have a mother who is a long-distance problem related to health. I wish I had found this blog a year ago.I agree with each and every experience here in this post.I want to know suggestion of other user here.
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